Below is a list of resources targeting education of minority patients/populations about minority participation in clinical trials. Also included are resources for researchers and clinicians for minority accrual to clinical trials. Some of the materials address clinical trials broadly; others focus on cancer clinical trials. Some focus on minority populations; others target the general population. Please take a moment to peruse these resources to highlight those which may meet your specific needs. Materials on this list can generally be obtained from the source for free or with a small shipping fee. You may also choose to use these as a basis for creating your own materials.
Resources Targeting Patients
- Taking Part in Cancer Treatment Research Studies
Educational booklet describing what a clinical trial is, including the different phases, how it works and how to find a trial.
National Cancer Institute (NCI)
http://www.cancer.gov/clinicaltrials/learningabout/Taking-Part-in-Cancer-Treatment-Research-Studies/CRS.pdf - Cancer Clinical Trials: The Basic Workbook
In depth explanation of the clinical trial process
NCI
http://www.cancer.gov/clinicaltrials/learningabout/basicworkbook/BasicsWorkbook_m.pdf - “You’ve Got the Power! “ Clinical Trials awareness materials targeting patients.
PDF Fact Sheet – 2-page fact sheet that describes what a CT is, why minorities should participate, benefits, risks and participant protections.
National Medical Association (NMA)
http://impact.nmanet.org/downloads/NMA_factsheet_ClinicalTrial.pdf - “You’ve Got the Power! “ Clinical Trials awareness materials targeting patients.
PPT Presentation – Describes what a CT is, African Americans perception of CT, why they should participate, protections, risks, questions to ask, etc NMA
http://impact.nmanet.org/patientsconsumers/education (look for PPT presentation). - “You’ve Got the Power! “ Clinical Trials awareness materials targeting patients.
PDF Booklet – 20 pages
NMA
http://impact.nmanet.org/downloads/power_booklet.pdf - “You’ve Got the Power! “ Clinical Trials awareness materials targeting patients.
Video – (10 minute video with presentations from physicians and patients)
NMA
http://impact.nmanet.org/patientsconsumers/clinical-trials-video Slide Program on CD-Rom - Learn About Clinical Trials
Basic to advanced information for all audiences about clinical trials. Learn about what clinical trials are, why they are important, and why people choose to take part. Also, learn strategies for educating others about the importance of clinical trials.
http://www.cancer.gov/clinicaltrials/learningabout - If You Have Cancer and Have Medicare…
Brochure provides general information about cancer treatment clinical trials, Medicare coverage, and questions to ask before joining a clinical trial
NCI
http://www.cancer.gov/clinicaltrials/payingfor/medicare-and-cancer-trials/medicare-and-cancer-trials.pdf - Clinical Trials: Pathways in the Quest
“Pathways in the Quest” video (10 minute video targeting AA accrual to CCTs with presentations from physicians and patients)
Ohio State University (OSU) Cancer Center
http://cancer.osu.edu/patientsandvisitors/cancerinfo/support/diversity/watch_clinical_trials_video/pages/index.aspx - Understanding Cancer Clinical Trials
DVD Discussing types of clinical trials, how they are conducted, and factors to think about. Used as a tool for health care professionals when discussing clinical trials with possible participants and their families.
NCI
https://pubs.cancer.gov/ncipl/detail.aspx?prodid=Q021 (go to website to order free dvd)
Resources for Clinicians and Researchers
- Cancer Clinical Trials: A Resource Guide for Outreach, Education, and Advocacy
The interactive workbook provides direction and guidance for individuals and organizations interested in developing specific clinical trial outreach and education activities.
NCI
http://www.cancer.gov/clinicaltrials/learningabout/outreach-education-advocacy/ResourceGuide_Book_m.pdf - Including Clinical Trials in Your Practice: An Overview
A Web-based course for healthcare providers who are interested in becoming clinical trials investigators and including cancer clinical trials in their practice
NCI
http://www.cancer.gov/clinicaltrials/conducting/clinicaltrialscourse - Cancer Clinical Trials: The In-Depth Program
This guide is designed to familiarize health care professionals and others with the ins and outs of clinical trials.
NCI
http://www.cancer.gov/clinicaltrials/learningabout/in-depth-program/InDepth_Book_m.pdf - ENACCT’s Free E-Learning Series Clinical Trial Teams Training Program
This program helps clinical research teams improve recruitment and retention, especially among ethnic and racial minorities.
Education Network to Advance Cancer Clinical Trials (ENACCT)
http://www.enacct.org/node/176 - ENACCT’s Free E-Learning Series Primary Care Provider Training Program
This program helps primary care providers explore their important role to increase clinical trials participation.
ENACCT
http://www.enacct.org/node/175 - Five Steps to Enhance Patient Participation in Cancer Clinical Trials
PDF guide and workbook outlining essential steps to optimizing patient trial awareness, access and enrollment.
ENACCT
http://www.enacct.org/sites/default/files/ENACCT%205%20Steps%20Guide%2011%2001_0.pdf - Racial and Ethnic Minorities Accrual to NCI Clinical Trials” – NCI efforts and resources.
PDF PowerPoint presentation on promising NCI strategies/efforts and resources for increasing minority accrual to clinical trials.
National Minority Quality Forum (NCI)
http://www.nmqf.org/presentations/10SpringfieldSAJCP2.pdf - National Clinical Trial Network (NCTN) website
General, comprehensive website geared toward providing resources for minority participation in clinical trials. Website includes map of current/available clinical trials. It aims to accelerate diversity and enrollment in clinical trials.
National Clinical Trial Network
http://nctrialnetwork.org/ - Cancer Clinical Trials Basics Modules
A Web-based course for healthcare providers and others who have a limited clinical research background and are somewhat unfamiliar with the clinical trials process.
NCI
http://training.cancer.gov/clinicaltrialsbasics/index.php - Educational brochure re: clinical trials for investigators
Brochure re: clinical trial participation (non-cancer specific) with an emphasis on diversity.
Eli Lilly
http://lilly.com/SiteCollectionDocuments/Media%20Kits/Diversity/Clinical%20Trial%20web%20version.pdf
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